Meet Gabriel
Saggital Craniosynostosis
Meet Gabriel - Diagnosed with Sagittal Craniosynostosis at 5.5 months old, Gabriel underwent Cranial Vault Reconstruction (CVR), major surgery to correct the shape of his skull.
His mum Keila remembers how overwhelming those early days felt. The lead-up to surgery was filled with worry, but afterwards, Gabriel amazed them with his strength and resilience “He showed us just how strong young children really are.”
Before surgery, Gabriel was already a happy, healthy, energetic little boy and now, Keila says he’s even more so! He’s meeting all his milestones and continuing to thrive.
Keila wants other families to know they’re not alone. “Although this condition is considered rare, there are so many others out there who have been through the same thing. Support is out there”.
Her advice for new parents facing a similar diagnosis? “Trust yourself and trust your doctors. Everyone wants the best for your child.”
Interview with Gabriel's Mum Keila...
Age at Diagnosis?
5.5 months.
What treatment have you or your child had for this Craniofacial difference?
Gabriel had a Cranial Vault Reconstruction (CVR).
What do you remember most about the early days of treatment?
It was all so daunting and the worry of our little boy going through such a huge surgery just stressed us out. The days after the procedure he showed us just how resilient and strong young children are.
How has this Craniofacial difference impacted your life and family?
This difference hasn’t changed our life and family much, before surgery our little boy was a happy, crazy and healthy child. Since his surgery he has been even more happy and crazy! Meeting all his milestones and excelling.
Is there something you wish more people knew about this condition?
That although it is said to be rare, there are more people out there going through or been through the same thing as you, you are not alone and you have support.
What is one piece of advice you would give to someone receiving a similar diagnosis for their child?
Trust yourself and trust your doctors. Everyone wants the best for your child.
Thank you to Gabriel's Mum Keila for sharing
their story.
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