Interview with Flora's Mum Caitlin...

Age at Diagnosis?

20 week pregnancy scan.

What treatment have you or your child had for this Craniofacial difference?

Flora was born with a bilateral cleft lip and palate. Since birth, she has undergone several surgeries, including lip repair, palate repair, and septum lengthening. She’s also had two sets of grommets inserted to support her hearing. Each procedure has brought her one step closer to improved function and confidence, and while the process has been challenging at times, we’ve seen her grow stronger with every stage.

What do you remember most about the early days of treatment?

The early days were a whirlwind—full of appointments, specialist visits, and a lot of learning. I remember feeling overwhelmed but determined. We had to quickly understand medical terminology, feeding techniques, and surgical timelines. What stands out most is how resilient Flora was, even as a baby, and how supportive the cleft team and community around us became.

How has this Craniofacial difference impacted your life and family?

It’s reshaped our definition of strength and patience. It has made us more aware of differences—visible and invisible—and taught us to advocate fiercely. There have been tough moments, especially around surgery recoveries or when navigating social situations, but our family has grown closer and more compassionate because of it. Flora has taught us to celebrate every small milestone.

Is there something you wish more people knew about this condition?

Yes. I wish more people understood that cleft lip and palate is more than just a cosmetic issue—it impacts feeding, speech, hearing, and overall development. I also wish people knew that children with craniofacial differences are just like any other kids: smart, strong, funny, and resilient. A little empathy and understanding go a long way.

What is one piece of advice you would give to someone receiving a similar diagnosis for their child?

Take it one day at a time. The road ahead might feel overwhelming, but you and your child are stronger than you think. Surround yourself with a good support team—both medically and emotionally—and don’t hesitate to ask questions. You are your child’s best advocate, and while the journey isn’t always easy, it’s filled with moments of incredible strength and hope.

Is there anything else you'd like to share?

This journey has taught us that differences are something to be embraced, not hidden. While we didn’t choose this path, it has given us a deeper appreciation for the resilience of children and the strength of families. Watching Flora grow into herself—confident, curious, and full of life—reminds us that she is so much more than her diagnosis. We’re incredibly grateful for the surgeons, speech therapists, audiologists, and support networks who have walked alongside us. Their care has made all the difference, and we want other families to know that they’re not alone.