There are many families who are going through a journey similar to what you are.  Feel free to make contact with some of the support groups available or with the Facebook Groups run by parents of children who have similar challenges.



We provide regular updates on our

Facebook About page.

  • Research

  • Patient Updates

  • Events

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Government Agencies


We are not able to provide medical advice; however we are happy share some services available here in Australia.

Support Services


Some of our patient families have formed support groups. They have offered to share their contact details here.

CRANIOSYNOSTOSIS patients and parents in Australia, wanting support, please join
This is a CLOSED PRIVATE group for families only.

Contact Us

Telephone:          +61 (08) 8267 4128


Opening Hours     M-F 9 am - 4 pm



226 Melbourne Street

North Adelaide SA 5006

PO Box 1138

North Adelaide SA 5006

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  • @Cranioaus
  • @CranioFacialFDN

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ABN 29 008 155 780   |   ACN 008 155 780