There are many families who are going through a journey similar to what you are. Feel free to make contact with some of the support groups available or with the Facebook Groups run by parents of children who have similar challenges.
We provide regular updates on our
Facebook About page.
We are not able to provide medical advice; however we are happy share some services available here in Australia.
Some of our patient families have formed support groups. They have offered to share their contact details here.
CRANIOSYNOSTOSIS patients and parents in Australia, wanting support, please join
This is a CLOSED PRIVATE group for families only.